Developmental Disabilities

DD/ID: Developmental/Intellectual Disabilities

Developmental or Intellectual Disabilities are a group of health conditions due to a physical, learning, language, or behavioral impairment. They typically impact one’s day-to-day functioning and are usually lifelong conditions. DD/ID is commonly diagnosed or recognized during the developmental stage, or before adulthood. Common types of DD/ID include autism, cerebral palsy, and Down syndrome.

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Check out our DD/ID resources below!

The Missouri Division of Developmental Disabilities is committed to improving the quality of life for individuals with developmental disabilities and their families. Offering support across the lifespan, the Division implements a statewide system of supportive services that focus on assuring health and safety, supporting access to community participation, and increasing opportunities for meaningful employment.

The Starling provider network is made up of more than 100 local organizations working together to ensure every Missourian with a disability has access to the support they need to live their best life in the community of their choice. Starling celebrates the power of community coming together and the idea of an individual taking flight.

For over 40 years, MACDDS has promoted local county initiatives in developmental disabilities services. Comprised of 65 county boards, 26 related provider organizations and 3 special purpose entities, our members lead local initiatives that have a statewide impact, improving the lives of individuals with intellectual and developmental disabilities and their families. MACDDS works to assure services and supports for people with developmental disabilities continue to be planned and carried out at the local level.

The Council’s Mission is: “To assist individuals, families, and the community to include all people with developmental disabilities in every aspect of life.” MODDC also believes that individuals, parents, and family members are the most powerful forces in forging a responsive and flexible support network for people with developmental disabilities.

People First of Missouri is a self-advocacy organization that was formed by, is run by, and exists for people with developmental disabilities in the state of Missouri. People First of Missouri is a non-profit organization that promotes equality for people with disabilities so they can live the life they want in the community.

Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the life span, for the needs of individuals with autism and their families. We do this through advocacy and support; increasing understanding and acceptance of people with autism; and advancing research into causes and better interventions for autism spectrum disorder and related conditions.

Operation Autism is a web-based resource specifically designed and created to support military families that have children with autism. It is the shared product of the vision and energy of the Organization for Autism Research (OAR) and the funding support of the American Legion Child Welfare Foundation.

Sesame Workshop created Sesame Street and Autism: See Amazing in All Children, a nationwide initiative aimed at communities with children ages 2 to 5. Developed with input from parents, people who serve the autism community, and people with autism, See Amazing in All Children offers families ways to manage common challenges, to simplify everyday activities, and to grow connections and support from family, friends, and community.

The National Association of State Directors of Developmental Disabilities Services (NASDDDS) represents the nation’s agencies in 50 states and the District of Columbia providing services to children and adults with intellectual and developmental disabilities and their families. NASDDDS promotes visionary leadership, systems innovation, and the development of national policies that support home and community-based services for individuals with disabilities and their families.

The Arc is the largest national community-based organization advocating for and with people with intellectual and developmental disabilities (I/DD) and serving them and their families. We work tirelessly to uphold our vision that every individual and family living with I/DD in the United States has access to the information, advocacy, and skills they need to support their full inclusion and participation in the community throughout their lifetimes.

The mission of the National Autism Association is to respond to the most urgent needs of the autism community, providing real help and hope so that all affected can reach their full potential.

NCD is an independent federal agency charged with advising the President, Congress, and other federal agencies regarding policies, programs, practices, and procedures that affect people with disabilities. NCD is comprised of a team of Presidential and Congressional appointees, an Executive Director appointed by the Chair, and a full-time professional staff.

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

The purpose of the United Cerebral Palsy Association shall be to promote the independence, productivity and full citizenship of people with cerebral palsy, intellectual and developmental disabilities, and other conditions, through an affiliate network.

The National Down Syndrome Congress is dedicated to an improved world for individuals with Down syndrome. We are the leading national resource of support and information for anyone touched by or seeking to learn about Down syndrome.

SafeinHome’s Remote Supports provides off-site staff for people with disabilities. Their Remote Support staff provides support with the help of an integrated system of sensors and assistive technology used in and out of the home. Remote Support allows individuals with disabilities to live in their own homes, with the independence and privacy they desire. Remote Support solutions cover visitor safety, medication management, seizure management, daily activity reminders, community engagement, transitioning youth, and much more.